So I mentioned that Ben has seen multiple doctors...
PCP countless times
His pain originated in his jaw and neck but in the past few months new symptoms seem to show up almost daily...and I admit at times, those close to him including myself have thought this could be in his head since it all seemed so bizarre.
Multiple people have casually mentioned the possibility of this being lymes disease over the past few months, we decided to take a closer look and after reading the symptoms...we were floored. I'm cutting and pasting the ones that apply to him
Ben does not recall a tic bite, but not even half of patients with lymes disease can. Back in the winter, Ben was frequently in the woods picking up firewood and believes it could have happened around then...
So at this point we feel we can't move forward unless we rule out lymes disease. All signs seem to lead to it, which could very well be wrong but we feel a little more confident starting there rather than starting all over with a new neurologist. Duke does not accept our insurance, so we would likely look into VCU.
Next Wednesday, at 10:30am Ben has an appointment with a lyme specialist in DC...
And we go from there..